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The Different Facets of Coping When Your Child Has a Rare Disease

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A rare disease diagnosis on a child is not easy on a marriage. Going through a stem cell transplant is not easy on a marriage.

It is not uncommon for a marriage to go through a rocky period during this process. I know this first hand. The year of diagnosis and transplant was one of the rockiest times in my marriage and led to an implosion of emotions, stressors, frustrations, fears and anger.

Since we processed and coped differently, instead of showing understanding to a different way of coping, we showed anger frustration and sadness because we had a hard time seeing the other person’s methods as valid.

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