I grew up in a small town in the South of France not far from the Mediterranean Sea. And from the age of 9, I spent every summer with my grandma in La Rochelle, a coastal town by the Atlantic Ocean.
Water is my element. Ehlers-Danlos syndrome (EDS) makes me a zebra, but really, I’m more like a mermaid. I come alive in the water, my body regaining strength with every movement.
Becoming chronically ill and disabled has opened up a new kind of dictionary to me. One containing the same words as all the other dictionaries, but with different meanings attached to them.
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