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The 6 Words That Saved My Life in the ICU
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When you live with a rare disease, small procedures can change into life-threatening calamities. Sadly in May, a routine surgery (well, as routine as a surgery can be during the COVID pandemic) to remove a large benign tumor in my thigh ended up deeply upsetting my undifferentiated connective tissue disease, leaving me waking up gasping for air in recovery because my body puffed up like a balloon.
The worst of the swelling was my airways. They were swollen to the point of almost being shut, which started the dramatic saga of having to get re-intubated and waking up in the ICU on a ventilator.
Remember this was all during the beginnings of the COVID pandemic, so I didn’t have a single family member or even an advocate who deeply knew my
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