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Teetering on the Adolescent Balance Beam With Rare Disease

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themighty.com

When entering parenthood, there’s almost always this one, sudden moment of intense fear that comes over all of us. You question whether you’re prepared, if you’ll be good enough, how you can help your child mentally and emotionally navigate the world you’re bringing them into…the list goes on and on.

In my case, I blinked my eyes and suddenly my son, Landon, was on the cusp of celebrating his 13th birthday. He’s gaining more independence and it’s a bittersweet realization.

As Landon’s medical caregiver, his more recent free-spirited thinking and maturity has caused me to question how to address this next chapter of his pain journey.

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