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Seeking a Diagnosis for My Child Is Like Playing 'Medical Whack-A-Mole'

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themighty.com

I wake up to her little voice telling me her lungs hurt. I’ve lost track of how many times this week I have awoken to her standing over me looking for comfort.

Sleep is hard for her and the nights have become very long for all of us. I wish I could bring her relief or comfort, but there isn’t anything that anyone can do for her.

We make it through the night and when morning hits she begins her routine. She spends the next hour working her way through her treatments.

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