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What I Want Doctors to Know About My Son With a Rare Form of Epilepsy

My 21-year-old son Andrew is diagnosed with epilepsy. His epilepsy diagnosis is a rare one. Lennox Gastaut syndrome (LGS) affects only about 50,000 children and adults in the United States. One of the most difficult aspects of LGS is uncontrolled seizures. This is definitely the most difficult part for Andrew and our family. I’ve learned a great deal over the years from Andrew’s neurologists, and now as a seasoned mom to a son who requires constant care, I would like to share my perspective in return. I want to maintain the relationship with Andrew’s neurologist, and also continue our partnership in Andrew’s care.

First and foremost, please understand there is nothing I want more than for Andrew’s seizures to be controlled. That one thing

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My Son With Lennox Gastaut