My Lupus: recent publications

How My Sister's Death Forced Me to Focus on My Lupus

It was a Sunday afternoon. I got a call from my mother saying my sister passed out, please come home. I grabbed water and my purse and began the two-hour drive to the hospital. I arrived at the ER and as I was hugging my mother the physician on call summoned us to “the room.” The room is that place they take you to give bad news. And that’s just what we were getting.

We were told by the ER doctor and ICU attending that my sister was very sick and probably wouldn’t make it through the night. She had a massive clot in her lungs which was causing her heart to fail. They could give her meds but they had their own set of side effects. We agreed to treatment and they took her off to ICU. Her heart stopped again. They were able to get her back but she was growing weaker. I left the hospital around midnight and sure enough on my way back early the next morning I got the call. She had passed. I was in total shock. My big sister was gone.

I got to the hospital moments later, and her body was still warm. I said my goodbyes to her and realized my life would be forever different, in more ways than I ever realized.

We held my sister’s funeral and then began the tedious task of going through her things. We have found so many things, including health records, and we are finding she had so many issues but never followed up. And with her death being sudden, and her not seeing a doctor in over four years, it made me think about my own health, but it also made me angry. I became so angry because if she had just gotten some form of insurance, which was available to her, she could have been seen for so many things. And maybe all this could have been avoided. But then I went back to thinking about my own health. Am I doing all I can do to

life Waters Provident

My Lupus

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