Ehlers-Danlos Syndrome: recent publications

The Loaf of the Party: Hanukkah With Hypermobile Ehlers-Danlos Syndrome

My bones slip and slide within me so tenderly that a bear hug from a friend causes dislocations and strain. Before I was diagnosed with the connective tissue disorder, Hypermobile Ehlers-Danlos syndrome (hEDS), people requested their favorite party tricks of me, wanting me to play contortionist for laughs: “Bend like a pretzel!” Party trick? I feel like a trick is being played on my body every time a simple movement becomes a major injury. Can I even receive a hug without breaking? I wish they would ask me to bring food instead.

I love to bake bread. Sometimes I hear one of my frequent injuries screaming at me to make bread, desperate for the physical therapy and healing achieved with the motion of kneading. My pain and soul wail for the

liking soul party

Can I (I) Ehlers-Danlos Syndrome

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