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The Loaf of the Party: Hanukkah With Hypermobile Ehlers-Danlos Syndrome
My bones slip and slide within me so tenderly that a bear hug from a friend causes dislocations and strain. Before I was diagnosed with the connective tissue disorder, Hypermobile Ehlers-Danlos syndrome (hEDS), people requested their favorite party tricks of me, wanting me to play contortionist for laughs: “Bend like a pretzel!” Party trick? I feel like a trick is being played on my body every time a simple movement becomes a major injury. Can I even receive a hug without breaking? I wish they would ask me to bring food instead.
