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When My Son With Spinal Muscular Atrophy Asks the Hard Questions
Sometimes when my son asks me questions, I can’t always answer them. He might be a little kid, but he has big thoughts on his mind. I guess that’s what happens when a person has a disability like spinal muscular atrophy that they are struggling to come to terms with or understand. Take the other day, for instance, my son fired off the following list of questions starting with, “Mommy, can I walk one day? I really wish that I could walk with my legs.” At which point, I felt my throat constrict and eyes well with tears, but before I could respond, my terminally ill and physically disabled son continued throwing out more hard questions like, “Can I have medicine to make me feel better? Can the doctors give it to me?”