Family liking weakness

On Staying Strong After an Unimaginable Diagnosis

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When I look back on my childhood, it is now clear to me that something was wrong with my health from birth. I was never physically active as a baby.

My mom says that all I wanted to do was eat, sleep and watch my older sisters play with each other. By the time I was in kindergarten, I needed assistance getting up off the floor.

But it would take more than 23 years before I would finally receive an accurate diagnosis of X-linked myotubular myopathy (XLMTM).

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