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My Journey to Finding the Right Feeding Tube With Rare Disease

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When I was first put on nasojejunal (NJ) tube feedings* by the gastroenterology (GI) team at my local hospital in 2016, I was too weak to object.

I had just been diagnosed as failure to thrive and having gastroparesis. Even though I was 19, my parents had signed the consent because I was so out of it.

Throughout 2016, 2017, and the majority of 2018, I spent a significant amount of time on a ventilator for everything from influenza, to sepsis, to pneumonia.

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