I resonate so much with the concept of living over surviving that I have it tattooed on my body. It’s a hard concept for people to grasp when they haven’t had their only goal for the day to be to survive it.
I spent the better part of 10 years basically living in and out the hospital. One admission to the next was my life, not exactly the ideal teen and young adult years, but it was my life.
I came to terms with it pretty quickly if I do say so myself. I realized that I was deteriorating faster than the professionals could figure any of it out, and the more interventions we tried the riskier life became, quite literally.
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