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Learning My New Role as a Mother of Two Growing Children With Cystic Fibrosis

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themighty.com

The room is dark and cold. I hear the familiar hum of an airway clearance machine in the next room overcoming the thunderstorm of white noise and air conditioning.

It is 3:00 a.m., and the room next door belongs to my 12-year-old son. My kids have chaotic sleep patterns. Years of medications, hospital stays, and one parent who can’t sleep mean someone is always awake.

I hear the choking sound of a mucus-filled cough. My throat catches, and without even being fully awake, I stumble out of bed to peek in the next room.

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