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I Thought My Rare Disease Diagnosis Would Be Validating

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I have heard the phrase: “be careful what you wish for” many times, but never in my wild imagination could I have predicted the situation I currently experience as a chronically ill 30-something woman.

You see, I first got ill when I was a very young child. I would be regularly unwell with viruses that would have me off nursery and primary school for a couple of weeks at a time, and this pattern progressed steadily until I was about 11.

After that, I started to manifest numerous long-term health issues and for the longest time, no one truly knew what was medically “wrong” with me.

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