Family life child parents

How We're Holding On To Hope for Our Child With a Rare Disease

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From an outside perspective, it would seem that our situation, in terms of parenting and caring for a child who’s sick, is very difficult.

However, the truth is that this didn’t happen overnight. Like anything else that is handed to you in life, there is a process you go through: First, you react to the issue.

Then, you adjust your life accordingly. Then, a “new normal” ensues. Focusing on What Really Matters Over the years, we have adjusted our life to meet our child’s needs and adapt to her condition.

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