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How We're Embracing a 'New' Quality of Life for Our Medically Fragile Child During COVID-19

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Quality of life. Pediatric palliative care. These are heavy terms for parents of medically fragile or terminally ill children to think about.

Then, the world adds a never-before-experienced pandemic to this already challenging mix. As parents of a medically fragile child who has introduced us to those two heavy concepts, we saw COVID-19 as another weight on our delicately-balanced scale.

In some ways, we were prepared more than the typical household. We have been using good hand-washing practices and temperature checks for years, long before it was on trend.

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