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How to Prepare Your Family for an Appointment When Seeking Support For Alagille Syndrome

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Seeking specialized health care for your child can be a stressful experience, especially if it’s for a rare condition like Alagille syndrome (ALGS).

You probably have a lot of questions about life for your child with ALGS and depending on where you live, you may have to travel outside of your city or state to get answers.

This article will help you prepare for an appointment with a specialist for your child living with ALGS. First, a brief review of the condition: Alagille syndrome is a genetic disorder that primarily affects the liver, causing it to develop too few or narrowed bile ducts.

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