When you become a parent, you become very connected to your child, they can even feel like an extension of your being. Often, we have to remind ourselves not to hold on too tight and that this is their life to live.
However, as a parent of a chronically ill child, you feel even more connected at a whole new deep and profound level. After all, you accompany them and wait with them at doctor’s appointments, lab appointments and the vast array of testing procedures.
You are there to hear the good news and the bad, and all of the potential outcomes. You hold their hand and provide support, watching their reactions closely to make sure they are OK.
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