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How to Embrace Your Child's Birth Defect

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For every parent of a child with a birth defect, there is a before and an after. Whether the line is drawn in the darkness of an ultrasound room, in the silence of a NICU nursery, or in the bustle and shock of an ER, it is there for each one of us … dividing what was and what is.

My line appeared suddenly, seven years ago, when a chatty sonographer stopped talking and started measuring. Humans are supposed to have four heart chambers, apparently.

Who knew? Most people like to keep their great arteries untransposed, as well, but my son Malcolm has always done things differently.

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