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How Illness, Hospitalization and Disability Transformed My Life

In 2009, I developed a rare illness called Bickerstaff brainstem encephalitis (a variant of GBS). Overall, I spent three-and-a-half years in medical facilities: six weeks in a coma, 18 months in bed in the hospital, and two years in rehab and group homes.

By the time I finally moved into my own suite in my caregiver’s home, disabled and a wheelchair user, I was not the same person I used to be.

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