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How I've Earned My Zebra Stripes as Someone With Ehlers-Danlos Syndrome

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themighty.com

I am a (South American) medical zebra. I live with Ehlers-Danlos syndrome, an alteration of the collagen fiber that makes it more elastic than normal.

That means my ligaments and tendons are so elastic that my joints are unstable. It also means that the tissues that must contract and relax so there is digestion, venous return, etc.

don’t do it well. The result is a life with pain, fainting spells and other adventures from a very young age. The day to day of a zebra is very special, almost magical — including black magic.

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