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Gaining Perspective on Life and Loss 5 Years After Losing Our Daughter

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Did you know a series of neurological conditions can be diagnosed by a routine eye exam? I am sure all you neuro parents are nodding your heads, but I didn’t realize this until I experienced it with June.

Immediately after the neurologist confirmed June was having not just seizures but infantile spasms, we had to run a series of tests on her: a spinal tap, blood work, genetic testing, a PET scan and an MRI.

All of it was hell to go through and not how I wanted to spend my time with my 10-week-old baby. We should be cuddling on the couch, not at the hospital poking and prodding June, I thought.

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