Family liking life positive

Deciding Whether to Have Children as Someone With a Genetic Condition

My boyfriend was with me 10 years ago this spring in the doctor’s office when I was given the positive diagnosis for Ehlers-Danlos syndrome, vascular type.

It felt like a death sentence. Indeed, I have lost a father and two aunts to complications of the syndrome that weakens the blood vessels and arteries, making them prone to aneurysms and dissections.

My brother had been diagnosed as well. But the doctors didn’t stop there. They continued with their tale of woe — the condition also affected the uterus, so having children carried an additional risk of tears and rupture.

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