Using an excerpt from my memoir,“Loving Large: a mother’s rare disease memoir“I’m sharing the “telling” story here. This is one that readers have reflected really hit home for them… I decided to not tell Aaron the diagnosis, opting not to name this phantom menace, sparing Aaron its rarity and the implications for a little while.
Surely that was a reasonable approach. It wasn’t like I could ask someone who’d been through this. I sought platitudes for comfort.