Using an excerpt from my memoir,“Loving Large: a mother’s rare disease memoir“I’m sharing the “telling” story here. This is one that readers have reflected really hit home for them… I decided to not tell Aaron the diagnosis, opting not to name this phantom menace, sparing Aaron its rarity and the implications for a little while.
Surely that was a reasonable approach. It wasn’t like I could ask someone who’d been through this. I sought platitudes for comfort.
I’d know the right moment. I knew my child best and would do what was right. I was his mother, after all. My heart would guide me.
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