Why is it that so many of us as parents feel sad, and even describe it as heart-breaking to learn that our child will end up in a wheelchair?
It has now been more than eight years since both my sons were diagnosed with Duchenne muscular dystrophy, Duchenne is a progressive muscle wasting disease that affects every muscle in the body.
Boys with Duchenne usually need a wheelchair full time from the age of 8-13 years old, this is very different for each boy. At the time, in August 2012, my sons were 1 and 2 years old.
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