people liking life beating Mobile

A Plea From the Rare Disease Community

Reading now: 541

Did you know that rare illnesses aren’t as rare as we think? A “one in a million” diagnosis should not be out of the differential simply because a physician has never seen it or deems it unlikely.

I would still have much more limited mobility, potentially long gone, had I been satisfied with “horse” diagnoses (which were wrong).

This is why we call ourselves zebras in the rare disease community — instead of thinking horse when you hear hoof beats, there are 300 million plus people for whom you needed to think zebra.

The website is an aggregator of articles from open sources. The source is indicated at the beginning and at the end of the announcement. You can send a complaint on the article if you find it unreliable.

Related articles
20 Ways You Can Become a Powerful Communicator
Some people seem to naturally know how to effectively communicate in a group setting. They can express themselves clearly and listen attentively without dominating the conversation.Being a powerful communicator is important for several reasons, including building and maintaining relationships, achieving goals, resolving conflicts, improving productivity, leading and influencing others, advancing in your career, expressing yourself more confidently and authentically, and improving your mental and emotional well-being. Effective communication is an essential life skill that can benefit you in all aspects of your life.1.  Listen actively: Practice active listening by giving your full attention to the speaker and responding to what they are saying. 2. Use “I” statements: Speak from your own perspective and avoid placing blame or making accusations. 3. Avoid assumptions: Don’t make assumptions about what the other person is thinking or feeling. 4. Be clear: Express your thoughts and feelings clearly and concisely by getting to the point and avoid using jargon or overly complex language. 5. Show empathy: Show that you understand and care about the other person’s feelings. 6. Offer valuable insights: When speaking in a group, provide a valuable takeaway or actionable item that people can walk away with. 7. Be an active listener: Listen attentively and respond accordingly, incorporating your points into the conversation. 8. Choose the right time: Pick the most opportune time to speak to ensure that you have the group’s attention and can deliver your message without interruption. 9. Be the unifying voice: Step in and unify the group’s thoughts to calm down the discussion and insert your point effectively. 10. Keep responses
Welsh Charities Week: how Brecon & District Mind help their community
Hi I’m Marie and in July I joined the team at Brecon & District Mind.I’ve been working in the third / voluntary sector in health & social care in Powys, the most rural county of England & Wales, for 19 years now! Before joining Mind I worked with Credu, an organisation supporting unpaid Carers & Young Carers.Brecon & District Mind supports local people in the area - our purpose is ‘we’re here when you need us to help you manage your mental health & wellbeing’.We currently do this in range of ways via services, such as:through drop ins, groups & activities and so much more."What our support looks like can look quite different as it’s tailored to you or your family."We always start by listening to people about their unique situation and working alongside people, building on their strengths towards their idea of what a good life would look like. So what our support looks like can look quite different as it’s tailored to you or your family.Being part of Welsh charities for so long has been very special, most of the memorable moments have been part of bringing people together to highlight important issues and to celebrate what has gone well, the most powerful has always been from the people themselves.It’s not surprising that Powys has the highest number of charitable organisations in Wales (3696) as so many support local areas.