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7 Things I Want People Who Are Newly Diagnosed With Chronic Illness to Know

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If you Google “living with vasculitis” or any other part of trying to figure out how to actually live with this rare disease, you will probably find very little.

If you’re new to rare disease life or chronic illness life, you might be surprised. If you’ve been in this fight for a while, though, you may feel completely unsurprised or even resigned to the fact that “This is just how it is.” Well, I am not going to resign myself to the lack of information on living with vasculitis.

It’s time we elevate our voices — all of our voices — no matter what rare diseases or chronic illnesses we have. So many of us live with strong similarities between our conditions.

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