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5 Things to Know When Caring for Someone With Creutzfeldt-Jakob Disease

Jakob Disease Creutzfeldt Jakob Disease Family liking personality life caring
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themighty.com
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So the worst has happened. After a horrendously fast onslaught of weird symptoms, after the specialists and neurologist rule out absolutely everything else, after days or weeks on a roller coaster of probable diagnoses, someone said it… Creutzfeldt-Jakob disease (CDJ) — a degenerative brain disorder.

The conversation that follows is devastatingly simple… no treatment, no cure, only one possible outcome… death. So what do you do now?

How do you help someone in times like this? This story is for you, the caretaker. So you know that you are not alone. That this path has been walked and survived by others before you and will unfortunately be walked by others after you until scientists and doctors find another path for us.

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