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5 Things No One Told Me About Living With Ehlers-Danlos Syndrome

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themighty.com

Ehlers-Danlos syndrome can be an elusive condition, one that has so many variants and wide-ranging symptoms it can take years to get a diagnosis.

I was only formally diagnosed with the hypermobile type last year, but that diagnosis managed to explain rather a lot about my body and the odd quirks I’ve been living with my whole life.

Here are just a few of the things I have discovered about living with EDS that were never fully discussed — with a condition this varied, some things are bound to slip through the cracks. 1.

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