Just over 10 years ago, I developed Bickerstaff brainstem encephalitis (BBE), and was in a coma for six weeks and hospitalized for 18 months.
The illness resulted in an acquired brain injury (ABI) which caused a multitude of physical, mental and emotional issues that confused me, puzzled doctors and frustrated nurses and care aides.
As a result, I experienced countless moments of fear, isolation, loneliness, confusion, depression and anxiety. I believe many of these situations could have been alleviated if hospital staff were better prepared.
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