Finding a good EDS patient advocate can be like finding a needle in a haystack. But fear not, my bendy friends — I’ve got some tips to help you on your quest!
Hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility is sometimes suggested to be a rare genetic disorder that affects the connective tissues of the body.
But it is not rare, affecting approximately 1 in every 500, according to scientists at MUSC at the Norris Lab. But while we wait for the medical community to get knowledgeable, we must advocate for ourselves.
Read more on themighty.com