When I was diagnosed with mal de debarquement syndrome (MdDS), an illness that leaves me feeling in constant motion and greatly affects my balance, nearly five years ago, I heard many different things from a variety of doctors with a variety of specialties.
The first doctor told me, “Dizziness is a rabbit hole. If I can’t figure out what is wrong with my best friend who experiences dizziness, odds are I won’t find out what’s wrong with you.” Luckily, the next doctor was more promising.
After he diagnosed me with MdDS, he told me: “it will go away within six months, so don’t go joining any support groups.” After the symptoms remained for more than six months, I saw a neuro-ENT who told me I should never fly again because my symptoms began
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